Honoring Individual Preferences at End of Life (National Academy of Medicine Report)
What national research reveals about communication, decision-making, and supporting care that reflects what matters most
Supporting Care That Reflects What Matters Most
The Dying in America report from the National Academy of Medicine explores how end-of-life care is experienced across the United States, with a focus on communication, decision-making, and the importance of aligning care with individual values and preferences.
The report highlights a consistent need for care that extends beyond clinical intervention — care that ensures individuals feel heard, informed, and supported as they navigate complex and often emotional decisions.
For end-of-life doulas, this research offers a broader framework for understanding the environment in which their work exists. It reinforces the importance of clear communication, thoughtful support, and the role of non-medical presence in helping individuals and families move through this time with greater clarity and intention.
Engaging with this information can support doulas in:
recognizing the importance of honoring individual values and preferences
supporting individuals and families as they navigate complex decisions
holding space for conversations that may feel uncertain or emotionally layered
maintaining a grounded, non-directive presence within a broader care team
This is not about guiding decisions, but about supporting the process — ensuring individuals feel seen, supported, and able to move forward in a way that reflects what matters most to them.
